When will I stop packing a bag? I threw it together in 4 minutes. It sat in the backseat. A change of clothes, 2 sets of Tucker's pj's. His favorite books, some toys and of course, his sidekick Snoopy. I had just gotten off the phone with the pediatrician, "Yes", she'd said, "I want to see him.". My message to the triage nurse had gone something like this: "Hi, this is Tucker's mom, he sees Dr So and So. He's a former 24 weeker. He's had a cold for 5 days. It's not getting better. I listen to ... View the Post
Did Someone Say Cake?
I love cake. Good cake. You know, double (or triple) layers of cream made of butter and sugar between dense moist, awesomeness. A year ago for Tucker's first birthday, we had a pretty awesome cake. But Tucker didn't get to eat a slice. He just wasn't there yet with eating solid foods, he was only eating pureed food. We decided to freeze a big chunk, I couldn't bare for this kid to miss out on eating his first birthday cake. It's kind of a big deal. We were hoping at some point this year, he ... View the Post
The Other Side
"There are moments that mark your life. Moments when you realize nothing will ever be the same and time is now divided into two parts, "Before this." and "After this." -Author unknown We're 30 days and counting. Isolation is technically over on April 1st in our region. For a micro preemie, typically 2 seasons of isolation is the recommendation and so this will be the last for us. As we approach the breakout date, I find my brain and heart full of thoughts. Tucker came home from the hospital ... View the Post
An Old Fashioned Tucker Report
When Tucker was in the hospital, like many families, we kept a Caringbridge page for updates. Many days I would issue the "Tucker Report" highlighting where we were and what the day had brought, his new weight, if he ate, how many bradys he'd had etc. It's been quite a while since I wrote a good old fashioned Tucker Report. It's totally ok if you want to skip through the report and get to the pictures. For a good snicker though, read the last two paragraphs. We're a month away from his 2nd ... View the Post
The Scrub Room
Week 1. We had started to corral all the foreign routines that were to become our life for the next 5 months. Showing our hospital bracelets to the receptionist. Remembering to bring the syringes of breast milk. Sorting out the faces between nurse, respiratory therapist, neonatologist, nurse practitioner, lactation specialist and social worker. Deciphering the monitor alarms from 'this is not good' to 'this is normal' to 'the nurses are running'. And of course, learning the ritual of scrubbing ... View the Post
Tucker’s Room
The 7th floor. It was a contradiction of space. At Presbyterian Hemby Children's Hospital, there are only 2 reasons you go to the 7th floor. The first is because you are excitedly awaiting news of the birth of a healthy, full term baby just one floor up. The other reason you go to the 7th floor is because you have a critically ill and very fragile baby in the NICU. In that one space, the shared waiting area, the emotions laid forth are almost bi-polar. On one couch sits a family with pink ... View the Post
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